In 2016, HHP launched the first real-world data survey on migraine headaches. Since then, over 13,000 survey respondents have contributed to HHP’s Migraine Headache Survey, and the survey results and graphical reports have had almost 400,000 pageviews. The most recent feedback has been outstanding, with over 80% of survey respondents reporting the data was easy to navigate and well organized. More than 70% reported that they would recommend the data to friends or family who are experiencing migraines. More than half of migraine survey respondents said they would use the migraine data to help themselves or someone they care for.
Most notably, after viewing the migraine survey data, respondents who reported their understanding of migraine headaches as excellent, very good, or good increased by almost 20%. An increase of over 23% was observed in respondents who reported their understanding of migraine treatments as excellent, very good, or good. Lastly, respondents who reported their understanding of migraine causes and triggers as excellent, very good, or good increased by 14%.
In 2017, HHP introduced the HHP Lupus Survey. To date, our lupus data has had over 25,000 pageviews, and continues to grow. We are extremely grateful to all our members who contributed to the Migraine and Lupus Surveys to provide useful information to others and help make the Real-World Data program a continued success.