Our Real World Data pilot program: We conducted our pilot Real World Data program in the years from 2016 to 2020. During that time we launched patient conditions surveys on Migraine and Lupus and we shared the results of the surveys on the approximately 50 pages of Real World Data reports which you can click into below. In all over 13,000 people took the surveys and over 500,000 people have viewed the data. We concluded the pilot in 2020 and collected patient outcomes, a summary of which can be seen in ‚ÄúWhat are Members are Saying‚ÄĚ below.

PLEASE NOTE: The data in the links below was collected from 2016 to 2020 and as a result some of it may now be out of date.

Get the Whole Picture

Healthcare is fragmented, and this adversely impacts quality, cost, and outcomes. For example, doctors and practitioners typically don’t have knowledge of each other’s medicines and the broad range of treatments available. Additionally, due to the rapid growth of technology and online resources, the amount of health information has increased exponentially. The abundance of information available has made it much more difficult to find the information you need. Knowing who to trust in a sea of commercial health resources can seem almost impossible.

These are significant problems, and that’s what HHP’s Real World Data program is about. We provide independent, unbiased information from our community, including all types of medicines, to help you make informed healthcare decisions. Participate by sharing your experiences or learning about how others manage their health conditions.

Share & Learn

Migraines are a headache disorder characterized by recurrent headaches that range from moderate to severe.

Lupus is an autoimmune disease that occurs when the immune system attacks tissues and organs.

Share your knowledge and help others by taking our Real World Data Survey today.

What Our Members Are Saying

In 2016, HHP launched the first Real World Data survey on migraine headaches. Since then, over 13,000 survey respondents have contributed to HHP’s Migraine Headache Survey, and the survey results and graphical reports have had almost 400,000 pageviews. The most recent feedback has been outstanding, with over 80% of survey respondents reporting the data was easy to navigate and well organized. More than 70% reported that they would recommend the data to friends or family who are experiencing migraines. More than half of migraine survey respondents said they would use the migraine data to help themselves or someone they care for.

Most notably, after viewing the migraine survey data, respondents who reported their understanding of migraine headaches as excellent, very good, or good increased by almost 20%. An increase of over 23% was observed in respondents who reported their understanding of migraine treatments as excellent, very good, or good. Lastly, respondents who reported their understanding of migraine causes and triggers as excellent, very good, or good increased by 14%.

In 2017, HHP introduced the HHP Lupus Survey. To date, our lupus data has had over 25,000 pageviews, and continues to grow. We are extremely grateful to all our members who contributed to the Migraine and Lupus Surveys to provide useful information to others and help make the Real World Data program a continued success.

Become Our Partner

As part of HHP’s philosophy of collaboration, we are committed to partnering with local community health groups and associations to support quality improvements in healthcare, better population health and lower costs for all stakeholders. At HHP, we are excited to work with partners in this new program by promoting the sharing of best practices and allowing the dissemination of information and data worldwide.

HHP works in partnership to deliver the Real World Data program individually or integrated with the other elements of HHP IMPACT, such as Patient Advocacy and Learning Academy. This program provides local and global health data including causes, symptoms and treatments on specific health conditions to improve patient outcomes.

Help Us Launch A New Condition!

Would you like to help us develop our new health condition surveys and the RWD program? Become an HHP Pioneer and share your voice in focus groups for new health conditions. Learn how to become a pioneer today!


RWD is derived from a broad range of individuals’ experiences in the real world, including patients often excluded from clinical trials.

Real-time updates

RWD can provide information to patients sooner than clinical trial data. HHP’s Real World Data is displayed in real-time.

Comparable outcomes

RWD enables patients to compare outcomes between a broader range of treatments.

Actionable insights

RWD complements clinical trial research and transforms it into actionable insights by adding greater value and impact.

Bridging the gap

RWD bridges the gap between clinical trial research and patient outcomes in real-world settings.


Countries Worldwide


Migraine Reports


Survey Respondent


Site Visitor


Migraine Treatment Ratings

Our Future Plans


Expansion of the RWD program to include more conditions & regions


Increasing our collaborative partnerships with other local and international NGOs


Developing the RWD program to include mobile access

Learn More About Our Other Services

Patient Advocacy

HHP provides access to a supportive peer-to-peer community.

Patient Education

We help patients through education and peer-to-peer information.

Our project is growing and we want you to be a part of it.
More People. More Information. Better Health.